Thursday, March 17, 2011

What is EE?

OK...although our journey doesn't begin here, the information starts now.  As I begin to write about Caleb's condition, I will forewarn you.  I will probably be writing a bit sporadically and hopefully it will still be easily understood.  It is a bit overwhelming, the information we have recieved thus far.  According to Wikipedia, EE, (Eosiniphilic Esophagitis). is a complicated digestive system disorder in which eosinophils, a type of white blood cell, are found in above-normal amounts in one or more specific places in the digestive system and/or the blood.
When the body wants to attack a substance, such as an allergy-triggering food or airborne allergen, eosinophils respond by moving into the area and releasing a variety of toxins. However, when the body produces too many eosinophils, they can cause chronic inflammation, resulting in tissue damage.
These rare diseases are diagnosed according to where the elevated levels of eosinophils are found.
Caleb's body is attacking itself and EE is sometimes considered to be an autoimmune disorder.
Common symptoms may include pain, swelling, skin rash, hives, reflux, choking, difficulty swallowing, nausea, vomitting, loss of appetite, stools containing blood and/or mucus, abdominal cramping, diarrhea, fever, esophageal rings, motility problems, bowel obstruction, bowel or stomach wall thickening (from scar tissue buildup), pseudopolyps, protein loss, anemia, malabsorption, developmental delay, bleeding, and several other symptoms that occur in individual cases. Many people also experience nutritional deficiencies and/or side effects from medications, such as neuropathy (nerve damage) or osteoporosis (decrease in bone mass).
Special amino acid-based formula may be needed as a supplement for those whose diets are so limited that they are unable to obtain enough nutrition from food alone. Some primary forms may require the avoidance of all regular foods and complete reliance on an amino acid-based formula, which may be consumed normally or pumped through a special feeding tube. For the most severe flare-ups or for those who experience problems from all foods and formulas, feeding through a blood vessel may be the only remaining option. Some cases also require additional symptom-specific help, such as pain medication. This disease may cause such severe bleeding or nutritional deficiency that they condition may be life threatening if not treated with appropriate medications. Since there is no known cure for Eosinophilic Esophagitis, management of the condition is very important in order to prevent severe damage to the digestive system and to the organs caused by the high numbers of eosinophils.
  I hope and pray that Caleb's condition improves.  I am  little fearful since he has seemed to go downhill recently.  He went from not being able to tolerate foods well, to having severe joint pain, abdominal bloating and pain, hives, other skin lesions and rashes, slurry speech, rectal prolapse and just an overall feeling of lethargy and jusy "not feeling right."  That is all for today.  I will be doing more research and writing as I learn more about Caleb's condition. 

2 comments:

  1. Can't wait to meet with Dr's and get thing under control!!! ?:)

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  2. Me too. It has already been one long journey. I am ready for the next road...

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